tag:blogger.com,1999:blog-1367040849683320839.post5141700886678453611..comments2023-06-09T10:14:15.204-04:00Comments on UII - Understanding Invisible Illnesses: Say WHAT?!Jenny Phttp://www.blogger.com/profile/14870488565611786295noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-1367040849683320839.post-62712704540763646422011-10-03T11:29:48.282-04:002011-10-03T11:29:48.282-04:00Thanks everyone! I love the feedback:)
Mark &...Thanks everyone! I love the feedback:)<br /><br />Mark & Tiffany - welcome to my blog!<br /><br />My brother (The Dorfist) knows me too well - I WISH that's what I was saying! I might have to remember it for the next conference...<br /><br />Cohort-in-awareness Bridget also knows me too well - don't give away my plans!! ;)<br /><br />Jen Daisybee, Tammy, and Annie - your guesses are all so different! Each made me smile:)<br /><br />So I declare everyone who commented gets a UII prize! (I warn you, it's just a token of my appreciation.) Please email me at uii.jennyp@gmail.com with your address so I can send you your "prize" (except Jon and Bridget, I know where to find you^-^).<br /><br />To the best of my (albeit, faulty) memory, I think I was saying something about how we all want to make things better for future patients and knock down hurdles for each other (though honestly, any of the guesses here are fair game).<br /><br />(PS this is Jenny, for some reason my computer doesn't let me comment on Blogger as myself!!)Jennyhttp://www.myuiiblog.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-1367040849683320839.post-13542092959501889262011-09-23T23:05:39.095-04:002011-09-23T23:05:39.095-04:00Mark brings up a great point! No matter what our i...Mark brings up a great point! No matter what our illness; we all come together fighting for the same goal of improving the communication barriers in healthcare. <br /><br />I won't join the "Guess what Jen's saying" contest since I was at this meeting :) <br />Good luck to the rest!Anonymoushttps://www.blogger.com/profile/13451092411599491289noreply@blogger.comtag:blogger.com,1999:blog-1367040849683320839.post-74774063828896775712011-09-23T13:09:01.236-04:002011-09-23T13:09:01.236-04:00I see I have to be the serious on here. You're...I see I have to be the serious on here. You're saying people have to work together...united we stand!annienoreply@blogger.comtag:blogger.com,1999:blog-1367040849683320839.post-55469383932669307662011-09-22T20:43:15.152-04:002011-09-22T20:43:15.152-04:00Here is the church, this is the steeple. Open the...Here is the church, this is the steeple. Open the doors and see all the busy people! Aw, look! They're all wiggling and happy!The Dorfisthttps://www.blogger.com/profile/12394023933504551612noreply@blogger.comtag:blogger.com,1999:blog-1367040849683320839.post-16570466010401468502011-09-22T13:03:30.867-04:002011-09-22T13:03:30.867-04:00Ms Yoda.. I know you think you know all BUT, here&...Ms Yoda.. I know you think you know all BUT, here's the thing, what about us little one's with no taber... we do not have ability to get the drugs to help us become stronger & wiser. <br /><br />That's my guess and i'm sticking to it!<br />TammyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1367040849683320839.post-39971219096284491942011-09-22T12:41:32.239-04:002011-09-22T12:41:32.239-04:00"Good, Good, now we can FINALLY take over the..."Good, Good, now we can FINALLY take over the world" *please insert shifty eyes here* :)Bridgethttps://www.blogger.com/profile/13815697927861940841noreply@blogger.comtag:blogger.com,1999:blog-1367040849683320839.post-6489635315539706422011-09-22T11:24:05.773-04:002011-09-22T11:24:05.773-04:00Hi Jennifer,
This sounds like a really interestin...Hi Jennifer,<br /><br />This sounds like a really interesting conference! I look forward to hearing more about it and the epatient Bill of Rights you mentioned.<br /><br />Now, as far as your picture goes......I think you had some children in teh audience and were telling the story of the "eency, weency spider" who "goes up the water spout"!! <br /><br />;) Sorry, I couldn't help myself.Feminist Voice with Disabilitieshttps://www.blogger.com/profile/04971702402040080054noreply@blogger.comtag:blogger.com,1999:blog-1367040849683320839.post-39702175292255048262011-09-22T11:08:40.559-04:002011-09-22T11:08:40.559-04:00It was indeed a fascinating "meeting of cyber...It was indeed a fascinating "meeting of cyber minds," Jennifer, and I'm so happy to have had the pleasure of sitting beside you and comparing notes. The biggest takeaway for me was how disease-centered my thinking has been -- "oh, HIV/AIDS is so unique and unlike other diseases" -- rather than hearing from people like you and seeing that the vast majority of our experience is quite similar!<br /><br />Mark S. King<br />MyFabulousDisease.comMark S. Kinghttps://www.blogger.com/profile/13831209087038799336noreply@blogger.com