tag:blogger.com,1999:blog-1367040849683320839.post8211684061981448015..comments2023-06-09T10:14:15.204-04:00Comments on UII - Understanding Invisible Illnesses: Who Cares About Sjogren's Syndrome?Jenny Phttp://www.blogger.com/profile/14870488565611786295noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-1367040849683320839.post-64125526859866155242011-05-12T15:07:03.187-04:002011-05-12T15:07:03.187-04:00THANK YOU, Jazzcat, for picking up on that! Yes, ...THANK YOU, Jazzcat, for picking up on that! Yes, Julia (Reasonably Well) inspired this theme:)Jenny Phttps://www.blogger.com/profile/14870488565611786295noreply@blogger.comtag:blogger.com,1999:blog-1367040849683320839.post-78422560887874209272011-05-11T15:22:10.057-04:002011-05-11T15:22:10.057-04:00Julia get away from this blog !!!!!!Julia get away from this blog !!!!!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1367040849683320839.post-34862279119836610862011-05-06T09:06:15.489-04:002011-05-06T09:06:15.489-04:00Mama - Sorry you won't be there:( I know in t...Mama - Sorry you won't be there:( I know in the past few years at least it's been the first Saturday in May, so if you're planning for next year maybe see about keeping that weekend open?<br /><br />Julia - I REALLY hope you had pompoms for that. Because that's what my mental image has. And it's a good one.<br /><br />Anne - so nice to 'meet' you!! I'm glad you're here and find something valuable. I get pretty odd in some of my posts but if you were ok with this one I think you'll enjoy it, haha. As for your work situation...I get where you're coming from. There are a LOT of times I insist on doing something that's not great for me just out of the desire to be a 'normal' employee (I disclose everything at work so it's not as if people don't know). At the same time, please remember there are a number of options out there for dealing with these unusual tasks in a way that's better for your body, and legal things in place to protect you. If you find yourself moving boxes because of a change in location or something that's not even part of your job, you REALLY can draw the line. But regardless, I hope you feel better soon and that no more silly tasks come your way!Jenny Phttps://www.blogger.com/profile/14870488565611786295noreply@blogger.comtag:blogger.com,1999:blog-1367040849683320839.post-55782391448497181302011-05-05T09:46:55.609-04:002011-05-05T09:46:55.609-04:00Good luck on the walk! It should be fantastic weat...Good luck on the walk! It should be fantastic weather and scenery! I am jealous! I had wanted to be a part of the walk this year. Unfortunately, one of our camping trips was planned for the same weekend. Next year!!!Blogger Mamahttps://www.blogger.com/profile/05222887642439201203noreply@blogger.comtag:blogger.com,1999:blog-1367040849683320839.post-62436522945884407152011-05-04T23:51:34.153-04:002011-05-04T23:51:34.153-04:00Rah rah rah! Sis Boom Bah! GOOOOOOOOO team Jenny!!...Rah rah rah! Sis Boom Bah! GOOOOOOOOO team Jenny!!Julia Oleinikhttps://www.blogger.com/profile/04857783768340014545noreply@blogger.comtag:blogger.com,1999:blog-1367040849683320839.post-88623481818874470142011-05-04T23:16:06.802-04:002011-05-04T23:16:06.802-04:00Just found your blog and I love it. I am sitting ...Just found your blog and I love it. I am sitting here with ice bags on my shoulders, lower arms, knees and ankles -- in order to relieve pain. The pain comes from a busy day at my usually sedentary job. I am so thankful to be working I do not want to lose my job by not being able to carry out these occasional physical tasks (packing boxes). <br /><br />I do have an Invisible Illness and I have pain everyday that is not totally relieved by diclofenac -- which is what my MD feels should be enough. It's nice to know that I am not alone. Thanks for your "blog" support.<br />AnneAnnenoreply@blogger.com