September 21, 2010

The Story of a Flare

Inspired by my flare-fried emotions and Simon & Garfunkel's "The Sound of Silence", this probably more poetry than a performance piece, but whatever it is, it's here for you.

Hello Illness, my old friend, I’ve come to fight with you again,
Because inflammation ever creeping, has stolen health from my safekeeping.
And the tumid, aching tendons I have strained
Still remain; with them, the need for patience.

In mental fog I softly groan, a haze induced by Prednisone,
Imprisoned in an unrelenting cramp, I dread the winter’s weather – cold and damp,
My eyes burn still, Sicca Syndrome worsened by sunlight
A Sjogren’s plight. And wearing thin is patience.

When through blurred vision I first saw, other people – many more,
People suffering without speaking, others passing by without listening,
Patients reaching out needing hope, support, and care.
If love’s out there, we’re running out of patience.

Our inner strength en masse we’ll show, despair fades when awareness grows.
See us now, right in front of you! We’re all around and everywhere with you!
A few can see me now, but so many move on by,
I heave a sigh, and search my soul for patience.

For a moment I watch the world, my former goals within it twirled,
Pretending that inside I’m not mourning the loss of plans that I had been forming.
I know I’m blessed by God in so many precious ways,
But still it stays – my endless need for patience.


  1. That is fabulous! I have tears running down my cheeks. Wow, bravo!

  2. I don't have words. Thank you.

  3. Jenny, if I didn't know this story was not fiction and the words were very real, I would think I were listening to some improv on a comedy show. You rhyme so beautifully, but the underlying words are so poignant and a true representation of what many of us go through during flares. Only fellow sufferers could identify. Be well and strong as this too shall pass.

  4. Love it - and so true!!!

  5. Thank you, ladies. Annie's comment is ironic - while writing I mentioned to my husband that the first verse actually comes out kind of funny...but as I went on it started to take on that darker tone - but I guess that's how I feel right now. While usually pretty good at putting a positive spin on things, I'm at a loss this time. This is the first time I'm truly facing the kind of loss I know most of you have already gone through, and it's shaken my faith (not in God, but in my future).

  6. Next time Julia and I are in Philly, maybe we can make a recording of this song....ok, maybe not.


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